Monday, February 11, 2013

Surgery Scheduled

Thought I'd send out an update on progress we've made over the last few weeks.  Things are getting scheduled and happening sooner than we thought.  We're excited to move forward though obviously scared as well.  If you remember my checklist from last month, progress looks like this:

1) Select a cranio-facial specialist...check!  Dr. Jensen at Children's is our cranio-facial surgeon
2) Select and meet with a neurosugeon...selected Dr. Lew as neurosurgeon and will meet with him April 5th
3) Get a CT scan in March...rescheduled for February 12th (that's this Tuesday!)
4) Review CT scan with cranio doctor...Dr. Jensen doesn't schedule another pre-op apt but will review the scans and meet with us the morning of her surgery, we'll review CT scan with neurosurgeon on April 5th.
5) Assuming all goes as it should and she grows as expected, surgery sometime between March and June (with possibly one more depending on the surgical approach and how she grows in the next few years)...and the BIG one...surgery scheduled for April 15th!!!

So that means assuming nothing changes, in less than 10 weeks Julia will be having surgery.  She has to be healthy at her pre-op apt and hold off on her 6 month vaccinations until after the surgery.  Other than that, all systems seem to be go.

Specific things to pray for in the upcoming weeks:
1) The CT scan goes well ~ they will probably need to sedate her so we can't feed her that morning but we can hope that she decides to hold still on her own by some miracle.  Otherwise just prayers that she tolerates it well and is back to her regular happy self shortly after the procedure.
2) The scan doesn't find anything unexpected.  We're hoping for a few technical things to be where the surgeon wants them but without going into a lot of details we'll just stick to the fact that the scans are what Dr. Jensen expects to see with no surprises.
3) Julia stays healthy healthy healthy in the coming months!  She has a cold right now and had a sinus infection last week so we need to get this household healthy and stay that way until after the surgery.  April is obviously better than February for cold/flu season but still lots of yuckiness going around.
4) That surgery itself goes smoothly, along with recovery!!!
5) All the other little details that don't matter nearly as much as the things above but still make life easier.  That our jobs are understanding of the fact that things will be hectic for a few months, that we find a way to piece together 6 weeks of in-home care for Julia so she stays safe post-surgery, that daycare is flexible and maybe just maybe works with us on being out that long without full pay the whole time (a girl can dream right?), that insurance isn't a pain in the rear end, etc, etc, etc.

After we're done with the CT scan I'll update and also give those that want it a bit more detail about the surgery itself.  Feel free to tune out if you're squeamish, I totally understand.

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